![]() My mental health was not something I could even let myself care for. I kept trying for some kind of “normal”, but everything was so off the rails without any way for me to bring it back. Instead I moved on changing my name to “Anomie”, a term for someone cut away from society through a catastrophic event. I went through a long period of dissociation and suicidal thoughts. Consequently, that all impacted my mental health. Along with losing independence for my acts of daily living, doctors also took away my driver’s license because of dysautonomia and vertigo that the surgery had not cured. ![]() I learned EDS was an incurable progressive condition caused by genetics that I then chose not to pass along. I was diagnosed with Ehlers Danlos Syndrome as the root cause. The brain and spine surgeries for Chiari saved my life but left me permanently disabled with quadriparesis. When the headaches started I thought they were migraines from studying too hard. I was planning a path for a phD, and I really wanted kids someday. I wasn’t sure what career path I wanted to take, but I was leaning towards either medical research or pharmacology. I achieved a 3.9 GPA in biochemistry, made friends, had a serious boyfriend and eventually a house we rented. I had total freedom with a driver’s license and my own car. I could keep a balanced diet because I had no GI issues yet. ![]() I was not disabled I was healthy and active and could go jogging when I felt stressed out or depressed. The best my mental health has ever been was when I was in college. ![]()
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